Madalyn started her first round of chemo therapy on Wednesday. They gave it to her at two different times. The first one didn't phase her. She continued to play and eat as normal. The second time was a little bit harder. It ran for seven hours and it did make her start to get nauseous. She threw up 10 times in a two hour period. She was given some Benadryl to take care of the nausea and slept throughout the night without throwing up any more.
One of the times Madalyn was throwing up her NG tube came out (the tube that has been putting sodium back in and helping to stabilize the levels enough so that she doesn't have any more seizures). The nurses decided to keep it out and just watch to see how her sodium levels did. We are excited to say that her levels have stabilized and have even risen the last two times they checked!
Yesterday was a little lighter of a dose, only having to run for 2 hours. They are still giving Madalyn the Benadryl to help with nausea though. Instead of making her drowsy like it does most people, Madalyn has decided to fight her exhaustion and play, play play! I think Terrell is more worn out than Madalyn!
The doctors told Trish & Terrell that she will most likely start loosing her hair any day. Terrell cut some of her little curls to save. We will miss her cute brown curls but know that she is beautiful even without them (she was bald when she was a baby). We now just have a good excuse to go buy all those cute little beanies and get some good use out of them!
Saturday will be her last day of chemo for this month. Sunday she will be given meds. to boost her immune system and her blood count. After that they will watch to see how she does for a couple days.
Madalyns amazing Neuro Surgeon, Dr. Walker comes in to check on Madalyn everyday and she blows him kisses. He is already talking to T&T about when they will need to bring her back once she is out of the hospital. Trish was joking that they are unnecessary appointments, he just wants to see "his Madalyn"again! Madalyn has also made some friends with several of the nurses taking care of her. There are many who just love to see Madalyn totting down the hall waving and blowing kisses.
One highlight for Madalyn last week was a visit from a golden retriever named Colonel. It is a dog they bring in to the hospital to help cheer up kids who are staying for longer periods of time. Madalyn loved it!
We are so grateful for the wonderful doctors working on Madalyn and the great care that has been given to her, physically and in thought and prayer. Thank you!
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6 comments:
hi, you don't know me but i am friends with camille. i had heard about madalyn and wanted to see how she was doing. my husband had cancer last year and it was really rough for our whole family. my heart goes out to you and the struggles you are facing. it made me tear up a little to read about her hair falling out, i know first hand that it makes it a little more "real" , but she is so beautiful it probably won't even matter to anyone. we are having little prayers for madalyn here and wish you all the very best.
Hi Terrell and Trishelle,
We were glad to see the blog for Madalyn and now we can keep track of all that is going on with you without bothering others. Know that we love you and our prayers are with you as you go through a hard time. It will be good to see you home again and back at church. We miss you!
Love,
Shayne and Mickie
Terrell and Trishelle,
We just want you to know that you and Madalyn are in our thoughts and prayers everyday. Frank and I think the world of you and your family. Please let us know if there is ANYTHING we can do to help. I am a really good babysitter and cabbie driver if you need help with the other kids. We love you!!
Cameron and Frank Righetti
Just want to let you know you have an old friend praying for you all from afar! If there is anything I can do...I know, you have heard that one a lot I would imagine. But just know, we (my family) are thinking and praying for all to go well with your darling family! Amber Gardner-Gorham
Hi Terrell and Trishelle,
We're so glad to hear about how Madalyn is doing! Let us know if we can help in any way--I would be happy to help with meals or babysitting!
Love,
Monica Weeks
Terrell & Trishelle,
Madalyn is just darling and such a tough little girl. You are in our thoughts and prayers.
Love, The Burris Family
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